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Patients reading their medical records: differences in experiences and attitudes between regular and inexperienced readers

Author
Isto Huvila
Mats Daniels
Ã…sa Cajander
Rose-Mharie Ã…hlfeldt
Abstract
Introduction. We report results of a study of how ordering and reading of printouts of medical records by regular and inexperienced readers relate to how the records are used, to the health information practices of patients, and to their expectations of the usefulness of new e-Health services and online access to medical records. Method. The study is based on a combined postal- and Web-survey of a simple random sample of 1000 patients who ordered a paper copy of their medical records from the Uppsala county council (Sweden) with a final analysed sample of 354 returned questionnaires. Analysis. The data were analysed using SPSS 21.0 using descriptive statistics, one-way analysis of variation (ANOVA) using Tamhanes T2 test, chi-squared tests and logistic regression analysis. Results. The analysis shows that individuals who had ordered a copy of their medical records in the past perceive their usefulness in broader terms than first-timers. The regular readers are also most concerned about their health and the quality of care. Conclusions. It seems that in addition to certain demographic factors, many of the variations in the data can be explained in terms of adaptive structuration theory. This is a result of a parallel structuration of patients, medical records and the paper-based and online technologies of access, and consequently how patients perceive records and the different methods of accessing and using them.
Year of Publication
2016
Journal
Information Research
Volume
21
URL
http://www.informationr.net/ir/21-1/paper706.html
Refereed Designation
Refereed
Taxonomy terms
medical records
patients
health information
health information behaviour
e-health
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Forthcoming presentations

  • Keynote at Digital Heritage Summit 2026
  • Information practices are environmental
  • Session: Archaeological data work: Interdisciplinary perspectives to interdisciplinary practices
  • Tracing interdisciplinarities of archaeological data work: identifying and turning evidence visible

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Isto Huvila

(né Isto Vatanen)  
Professor in  
Information Studies  
Department of ALM  
Uppsala University

Docent (adjunct professor) in information management  
Information studies  
Ã…bo Akademi University

Isto Huvila is working on management and organisation of what we know and how we know in contexts ranging from social media to more traditional arenas of learning and working. My special areas of expertise are organisational information, social media, health, archives, libraries, museums and cultural heritage.

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