Patients' Perceptions of their Medical Records from Different Subject Positions

Publication Type:

Journal Article

Source:

JASIST, Volume 66, Number 12, p.2456–2470 (2015)

Abstract:

Better knowledge of the habits and preferences of patients helps one understand why and how patients might need or want to access health services online and offline. Such knowledge provides a basis for designing systems for providing complementary health information. This article discusses how patients' conceptualizations of their health-information-related preferences, motivations, and needs are linked to the perceived role of medical records as an informational artifact. We identified seven subject positions: (P1) Hypothetically positive to e-health services generally, (P2) Positive to reading medical records due to implications, (P3) Positive to all Internet use including medical records online, (P4) Distrustful and wants to be in control of health treatment, (P5) Worried about health, (P6) Wants communication with health care professionals, and (P7) Do not understand their medical record. These subject positions can explain the worry and enthusiasm documented in earlier literature. The diversity of subject positions implies that health care information services should be planned with different subject positions in mind rather than a simple demographic group. Special attention needs to be given to finding flexible solutions that address the opportunities and worries of the identified subject positions.
AttachmentSize
PDF icon HuvilaEtAlPatientsReading-Preprint.pdf490.16 KB

Archaeology and Archaeological Information in the Digital Society shows how the digitization of archaeological information, tools and workflows, and their interplay with both old and new non-digital practices throughout the archaeological information process, affect the outcomes of archaeological work, and in the end, our general understanding of the human past.

Read more

COST-ARKWORK is a network funded by the COST scheme that brings together the multidisciplinary work of researchers of archaeological practices in the field of archaeological knowledge production and use. The aim of the network is to make a major push forward in the current state-of-the-art in knowing how archaeological knowledge is produced, how it is used and how to maximise its positive impact in the society.

Read more

CApturing Paradata for documenTing data creation and Use for the REsearch of the future (CAPTURE) investigates what information about the creation and use of research data that is paradata) is needed and how to capture enough of that information to make the data reusable in the future. 

Read more