Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health

Submitted by Isto Huvila on Thu, 05/28/2020 - 21:55

A presentation together with Hanife Rexhepi and Jonas Moll at ISHIMR 2020 conference online.


Despite the fact that patient accessible electronic health records (PAEHRs) have been around for many years in several countries, there is a lack of research investigating user preferences regarding means of receiving bad news, including through PAEHRs, and little is known especially about the patients that prefer to receive bad news online. This study, based on a national patient survey in Sweden (N=2587), investigated this. Results show that, generally, receiving bad news by reading in the PAEHR is still among the least preferred options. Additionally, a higher proportion of men want to receive bad news in the PAEHR compared to women (p=0.001) and the same goes for those who are not working/have worked in healthcare (p=0.007). An effect of disease groups was also found, showing that diabetes patients in particular want to receive bad news through the PAEHR.