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Patients' Perceptions of their Medical Records from Different Subject Positions

Author
Isto Huvila
Ã…sa Cajander
Mats Daniels
Rose-Mharie Ã…hlfeldt
Abstract
Better knowledge of the habits and preferences of patients helps one understand why and how patients might need or want to access health services online and offline. Such knowledge provides a basis for designing systems for providing complementary health information. This article discusses how patients' conceptualizations of their health-information-related preferences, motivations, and needs are linked to the perceived role of medical records as an informational artifact. We identified seven subject positions: (P1) Hypothetically positive to e-health services generally, (P2) Positive to reading medical records due to implications, (P3) Positive to all Internet use including medical records online, (P4) Distrustful and wants to be in control of health treatment, (P5) Worried about health, (P6) Wants communication with health care professionals, and (P7) Do not understand their medical record. These subject positions can explain the worry and enthusiasm documented in earlier literature. The diversity of subject positions implies that health care information services should be planned with different subject positions in mind rather than a simple demographic group. Special attention needs to be given to finding flexible solutions that address the opportunities and worries of the identified subject positions.
Year of Publication
2015
Journal
JASIST
Volume
66
Number of Pages
2456–2470
DOI
10.1002/asi.23343
Refereed Designation
Refereed
Taxonomy terms
DOME
medical records
patients
health information behaviour
discourse analysis
File attachment
HuvilaEtAlPatientsReading-Preprint.pdf (490.16 KB)
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Isto Huvila

(né Isto Vatanen)  
Professor in  
Information Studies  
Department of ALM  
Uppsala University

Docent (adjunct professor) in information management  
Information studies  
Ã…bo Akademi University

Isto Huvila is working on management and organisation of what we know and how we know in contexts ranging from social media to more traditional arenas of learning and working. My special areas of expertise are organisational information, social media, health, archives, libraries, museums and cultural heritage.

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