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Cancer patients information seeking behaviour related to online electronic healthcare records

Author
Hanife Rexhepi
Isto Huvila
Rose-Mharie Ã…hlfeldt
Ã…sa Cajander
P. Bath
P. Jokela
L. Sbaffi
Abstract
Patients online access to their EHR together with the rapid proliferation of medical information on the Internet has changed the way patients use the information to learn about their health. It is well documented that patients often turn to the Internet to find information about their health and care. However, little is known about patients information seeking behaviour when using online EHRs. By using information horizons as an analytical tool this paper aims to investigate the information behaviour of cancer patients who have chosen to view their EHRs (readers) and to those who have not made that option (non-readers). Thirty interviews were conducted with patients. Based on information horizons, it seems that non-reading is associated with living in a narrower information world in comparison to readers. The findings do not suggest that the smallness would be a result of an active avoidance of information, or that it would be counterproductive for the patients.
Year of Publication
2020
Taxonomy terms
health information behaviour
health information
File attachment
Rexhepi2020a.pdf (246.86 KB)
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  • Keynote at Digital Heritage Summit 2026
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Isto Huvila

(né Isto Vatanen)  
Professor in  
Information Studies  
Department of ALM  
Uppsala University

Docent (adjunct professor) in information management  
Information studies  
Ã…bo Akademi University

Isto Huvila is working on management and organisation of what we know and how we know in contexts ranging from social media to more traditional arenas of learning and working. My special areas of expertise are organisational information, social media, health, archives, libraries, museums and cultural heritage.

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