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Cancer patients' attitudes and experiences of online access to their electronic medical records: A qualitative study

Author
Hanife Rexhepi
Rose-Mharie Ã…hlfeldt
Ã…sa Cajander
Isto Huvila
Abstract
Patients access to their online medical records serves as one of the cornerstones in the efforts to increase patient engagement and improve healthcare outcomes. The aim of this article is to provide in-depth understanding of cancer patients attitudes and experiences of online medical records, as well as an increased understanding of the complexities of developing and launching e-Health services. The study result confirms that online access can help patients prepare for doctor visits and to understand their medical issues. In contrast to the fears of many physicians, the study shows that online access to medical records did not generate substantial anxiety, concerns or increased phone calls to the hospital.
Year of Publication
2018
Journal
Health Informatics Journal
Volume
24
Number of Pages
115-124
DOI
10.1177/1460458216658778
Refereed Designation
Refereed
Keywords
electronic medical records
medical information
patient access
patient empowerment
File attachment
Rexhepi2016postprint.pdf (147 KB)
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Forthcoming presentations

  • Keynote at Digital Heritage Summit 2026
  • Information practices are environmental
  • Session: Archaeological data work: Interdisciplinary perspectives to interdisciplinary practices
  • Tracing interdisciplinarities of archaeological data work: identifying and turning evidence visible

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Isto Huvila

(né Isto Vatanen)  
Professor in  
Information Studies  
Department of ALM  
Uppsala University

Docent (adjunct professor) in information management  
Information studies  
Ã…bo Akademi University

Isto Huvila is working on management and organisation of what we know and how we know in contexts ranging from social media to more traditional arenas of learning and working. My special areas of expertise are organisational information, social media, health, archives, libraries, museums and cultural heritage.

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